Cynthia Adinig is a researcher, health policy advisor, author, and patient advocate. She is the founder of CYNAERA and creator of the patent-pending Bioadaptive Systems Therapeutics (BST)™ platform. She serves as a PCORI Merit Reviewer, Board Member at Solve M.E., and collaborator with the Selin Lab at the University of Massachusetts.

 

Cynthia has co-authored research with Harlan Krumholz, MD, Dr. Akiko Iwasaki, and Dr. David Putrino; contributed to Yale’s LISTEN Study; advised Amy Proal, PhD through the Mount Sinai Patient Advisory Board; and worked with Dr. Peter Rowe of Johns Hopkins on national outreach for post-viral and autonomic illness. She authored a Milken Institute essay on AI and healthcare, testified before Congress (video), and spoke at the bipartisan announcement of the COVID-19 Long Haulers Act with Representatives Don Beyer and Jack Bergman (press release).

 

In 2022, Cynthia was invited to brief the White House Pandemic Preparedness Team on the lived realities of Long COVID and systemic care barriers. She was appointed by the Biden Administration to the HHS Long COVID Advisory Committee in 2023, making her one of the few federally vetted patient leaders in this field.

 

Her collaborations span the NIH, AHRQ, SAMHSA, CDC, NASEM, FDA, and the Critical Path Institute (CPATH). She was a panelist and breakout participant at the AHRQ and Senator Kaine Long COVID Summit in Richmond (summit recap), a speaker for the joint SAMHSA–CDC webinar series on Long COVID, and participated in National Academies focus groups that helped refine the federal description of the condition through expanded patient involvement.

 

She also helped design and teach a national training curriculum preparing people with chronic conditions to engage in research and policy leadership. Cynthia has served as a panelist alongside Dr. Nancy Klimas, spoken to medical students at Johns Hopkins University about ME/CFS and Long COVID through MEAction, and joined Lamar University faculty and campus police for a forum on domestic violence and institutional accountability.

 

Through CYNAERA, she develops modular AI platforms, including the IACC Progression Continuum™, Primary Chronic Trigger (PCT)™, RAVYNS™, and US-CCUC™, that help governments, universities, and clinical teams model infection-associated conditions and improve precision in research and trial design. Her work has been featured in TIME, USA Today, and other major outlets.

 

Cynthia’s work is informed by her lived experience surviving the first wave of the COVID-19 pandemic, which deepened her commitment to reforming how chronic conditions are understood, studied, and treated. She is also an advocate for domestic-violence prevention and patient safety, bringing a trauma-informed perspective to every project. Even after becoming disabled from Long COVID, she remained a resource for other parents of gifted children, guiding her son Aiden, who joined Mensa International at age five, and continues to mentor mothers navigating the intersection of disability, gifted education, and resilience.

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